Anna's written summary article can be found by clicking, Through her own personal experiences of living with EDS, in addition to working closely with clients with hypermobility and EDS, Jeannie has created an, Jeannie's blog (including articles such as ' EDS and exercise - not the opposites you'd think'') can be found, Jeannies's talk 'Strengthening your hypermobile core with Pilates', presented at the Ehlers-Danlos Symposium in Ghent (2018), can be found by clicking, The International Arthritis & Hypermobility Centre (IAHC) -, Alan Hakim MA FRCP  (NB/ Currently on a 12 month, A list of health care professionals around the globe is available from the, A list of PoTS friendly health care professionals is available from, A list hypermobility friendly health care professionals is available from the. We have compiled a list of health care professionals and wellness practitioners with an interest in, and who are supportive of Ehlers-Danlos syndrome Hypermobility Type and joint hypermobility syndrome. UB5 4NY, https://www.thegrovemedicalpractice.nhs.uk/conditions/ehlers-danlos-syndromes/. Additional links to lists available through other websites can be found at the end of this section.
Come to me with a specific issue or two and we’ll work to find solutions. For patients with suspected complex Ehlers-Danlos syndrome (excluding hypermobility type), Marfan’s syndrome and osteogenesis imperfecta we will assess and recommend genetic testing if indicated. We have compiled a list of health care professionals and wellness practitioners with an interest in, and who are supportive of Ehlers-Danlos syndrome Hypermobility Type and joint hypermobility syndrome. In some cases a referral may be required before an appointment can be made. ', https://thedentalbarn.co.uk/ehlers-danlos-syndrome-east-sussex/. Find a private rheumatologist near you, including the top rheumatology consultants and specialists in the UK. Jane Simmonds, DProf, MA, PGDip, BAppSc, BPE, MCSP, MACP, SFHEA Physiotherapy, Hypermobility, EDS, sports and performing arts injuries, chronic fatigue, pain, www.central-health.com/services/hypermobility/index.html, www.bodysymphysio.co.uk/dawn-thundow-physiotherapist/, Physiotherapist Northolt,  Information on Hypermobile Ehlers-Danlos Syndrome (American Journal of Medical Genetics) Royal College of Paediatrics and Child Health position statement on EDS; What to do if your patient comes with a self diagnosis of EDS. Dermatology (listed in alphabetical order): Gastroenterology (listed in alphabetical order): Gastrointestinal symptoms associated with HSD/EDS and PoTS (From age 16), Clinics at The Royal London Hospital London and St Bartholomew's Hospital London, thephysiciansclinic.co.uk/physicians/professor-qasim-aziz/. Mitakides is dedicated to complete care for his patients, including treatment of craniofacial pain and TMJ disorder in the Ehlers-Danlos Syndrome (EDS) patient. In some cases a referral may be required before an appointment can be made. Come to me with a specific issue or two and we’ll work to find solutions. www.iahcentre.com or contact The Practice Manager at info@iahcentre.com or by telephone on +44(0)7444 101 381. Midwife, infant feeding consultant, active birth teacher and parenting consultant. From craniofacial pain, temporomandibular joint disorders (TMD) and sleep apnea management to top-notch dental care, our team at JNT Dental provides you with access to some of the most cutting-edge diagnostic tools and treatment options available today. Individual appointments start at just £20 per 30 minutes. A list of PoTS friendly health care professionals is available from PoTS UK: A list hypermobility friendly health care professionals is available from the Hypermobility Syndromes Association: http://hypermobility.org/help-advice/hms-clinics/​​​, Health and Wellness Practitioners - hEDS & HSD. Perfect for vague feelings of I’m-sure-it-shouldn’t-be-this-hard. For the best experience, please enable Javascript in your browser settings. Joint hypermobility syndrome. Prolothera/Regnerative Therapy (HEDS/EDS) shares her parenting tips  - 'Making the parenting world work for us with a newborn, despite disability'. In addition, Karen, their pilates instructor has been on a specialist APPI course on how to help hypermobile individuals with pilates exercises. Their caring, especially in a world … General Practitioners (listed in alphabetical order): https://drkatebarnes.co.uk/ehlers-danlos-syndrome-pandoras-box/, 81 Danemead Grove,  If you would like to have your name included (or removed) please write to us at redcliffhouse@hotmail.com. Anna's written summary article can be found by clicking here. The service comes under the UCLH Department of Rheumatology. Sleep Clinics (listed in alphabetical order): The Sleep Service (appointments by medical practitioner referral or 'Choose and Book' only). Jeannie's blog (including articles such as ' EDS and exercise - not the opposites you'd think'') can be found here. Through surgical procedures, they may help correct deformities, treat fractures, improve movement, treat infections and acquire … Hypnotherapy to help you cope better with hEDS/HSD related pain and even reduce it.